WeCureUs Research
Aggregate community data for research.
WeCureUs is a patient-driven platform for people living with multiple sclerosis and other chronic neurological conditions. Participants contribute structured data about their lived experience. Researchers query that data in aggregate.
Every result is a population statistic. No individual record is accessible through any query. The query interface is structurally prevented from reaching any single participant. Every researcher reaches the same aggregate query interface that is available to any user, with no privileged data access and no individual-level data. WeCureUs does not sell, license, or monetize individual-level participant data, and does not accept any arrangement that conditions funding on influence over what the platform asks or how results are framed.
Register
Create a researcher account and receive an API key. Any individual may register. Affiliation is optional.
Query
Build an aggregate query: pick a module, a question, optional cohort filters, and see the distribution.
Documentation
What can be queried, how k-anonymity and generalization work, and how to cite WeCureUs data.
Terms
The Researcher Data Use Agreement. Acceptance is required before an API key is issued.
A note on the data
Results are self-reported by participants and have not been independently verified against clinical records. Aggregate results are subject to a minimum cohort threshold. Where a small cohort cannot be reported at exact precision, results may be returned at a coarser granularity, such as a five-year band, rather than withheld.